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  • Facial Pain Website Resources

    As the public becomes more aware of neuropathic facial pain, including TN (Trigeminal Neuralgia), a number of internet resources are emerging that are directed to patients, family, and physicians who deal with this disorder and others that cause similar problems. The Facial Pain Association (formerly The Trigeminal Neuralgia Association) posts these sites for your information; however, the association does not “endorse” any site or the information therein.

    In most cases clicking on the links below will take you off the TNA website.
      “Nursing Webinar: Pain Management” This 68-minute webinar, presented by the Rasmussen College Alumni Association, provides essential tips for patient pain management including information on:- Basic Neurophysiology of Pain Pathways- Pharmacological and Non-pharmacological Interventions of Pain Pathways

    -Matching neurophysiology with pharmacological

    - Pathophysiology of Pain

    -When Pain becomes Chronic or Persistent Pain

    -Interventions of Chronic Persistent Pain

    - Nursing Contributions to Pain Management.

    This is truly an insightful presentation for helping patients manage their pain and is available free online (no log-in or personal information required).

     


     

    Management of Temporomandibular DisordersTechnology Assessment Conference Statement, April 29-May 1, 1996

    MVD Surgery.  Learn what happens during microvascular decompression surgery (MVD).  A detailed presentation and explanation of each stage of microvascular decompression surgery (MVD), narrated by Dr. John Tew.

    Needy Meds.   Information you need to get your medicine.

    Free Medicine Foundation. If you can’t afford to pay for your prescriptions you can enroll into special free medicine programs.

    Select Care Benefits Network.  The Solution for High Prescription Medication Costs.


    Strength For Caring.  Strength for Caring is an online resource and community for family caregivers to help them take care of their loved ones and themselves. The site provides information about a variety of health conditions including  those associated with pain as well as housing, finances and insurance. It includes a caregiver manual, caregiver community and practical care tips.


    Pain Treatment Topics.  The mission of Pain Treatment Topics is to serve as a noncommercial resource for healthcare professionals, providing open access to clinical news, guidelines and reports, research, information and education for a better understanding of evidence-based pain-management practices.


    The HealthWell Foundation. A 501(c)(3) non-profit, charitable organization that helps individuals afford prescription medications they are taking for specific illnesses.


    NIH News In Health. A monthly newsletter bringing you practical health news and tips based on the latest NIH research.


    Mercy Medical. Free air travel for medical needs


    Check for Drug Interaction


    TNA Information Papers Available.  FREE!  Receive via email.


    TN information in German

    TN information in Spanish

    Health Information in Spanish Salud Informacion en Español from the Centers for Disease Control, US Government


    Trigeminal Neuralgia Diagnostic Questionnaire.  Answer questions that may help you determine if you have TN.  This was developed by the Department of Neurological Surgery at Oregon Health and Science University in Portland, Oregon.  Once the questionnaire is complete, you will see a potential diagnosis.  Your information will NOT be saved and/or collected.


    Caring.com.  To help you care for your aging parents and other loved ones. Our mission is to give you the information and other resources you need to make better decisions, save time, and feel more supported.


    The International Academy of Compounding Pharmacists (IACP) is an international, non-profit association protecting and promoting the art and skill of pharmaceutical compounding. IACP’s membership consists of more than 1,700 pharmacists who are committed to protecting the birthright of the profession of pharmacy – compounding. Since the organization’s inception in 1991, IACP has sought to protect pharmacists’ rights to compound medications. And, in 1997 IACP met this goal; legislation was passed to ensure this protection. A pharmacy compounding provision was attached to the Food and Drug Administration Modernization Act of 1997 (FDAMA) recognizing the importance of compounding and providing for its continued practice.


    The American Society of Pain Educators is a non-profit professional organization, whose mission is to improve the standards of clinical pain practice by providing training in pain management education and helping to establish credentialed pain educators (CPEs) as standing resources within pain practices, hospitals, healthcare systems, and long-term care facilities. The ASPE is the sole credentialing agency for pain educators in the United States. A Credentialed Pain Educator (CPE) is a healthcare professional who has developed a core body of knowledge and practical skills in the education and management of pain above and beyond their primary training. The CPE’s core focus is to help improve the quality of life of those suffering with pain, as well as serve as an in-house resource for their healthcare professional peers.


    International Association for the Study of Pain.  The largest multidisciplinary international association in the field of pain. Founded in 1973, IASP is a non-profit professional organization dedicated to furthering research on pain and improving the care of patients with pain. Membership in IASP is open to scientists, physicians, dentists, psychologists, nurses, physical therapists, and other health professionals actively engaged in pain research and to those who have special interest in the diagnosis and treatment of pain. Currently IASP has 6744 individual members from 107 countries.


    National Center for Complementary and Alternative Medicine – National Institutes of Health: Many pain patients have heard about “complementary” medicine as an element of treatment for pain.  This office within NIH is a place to review what is known (and not yet known) about outcomes of such treatments.


    Medline Plus TN information from the US National Library of Medicine and the National Institutes of Health.


    Disability Secrets.  Applying for social security disability and SSI benefits can be difficult due to how long a claim may take and the high chance of being denied. But those who are denied disability can win benefits by utilizing the appeals process. To increase the chances of winning, applicants should learn about the system and file an appeal when a claim is denied.


    http://www.hfs-assn.org/- The National Hemifacial Spasm Association is international online support community of individuals who have or are presently suffering from Hemifacial Spasm.


    http://www.umanitoba.ca/cranial_nerves/ccndhome.htm:  The Center for Cranial Nerve Disorders is a neurosurgery clinic specializing in the diagnosis and treatment of disorders involving the cranial nerves. This web-site provides informative and interactive pages about cranial nerve disorders and their treatment options, including an interactive tutorial on TN and all the procedures.  The tutorial will take about 30 – 45 minutes of your time.


    Facial Neuralgia Resources: is a large, patient-to-patient resource site information on face pain caused by disorders of the  cranial nerves.  These disorders include trigeminal neuralgia, atypical trigeminal neuralgia, atypical facial pain, anesthesia dolorosa.


    Acoustic Neuroma Association: Acoustic Neuroma is a slow-growing benign tissue growth on the eighth cranial nerve.  Diagnosis by MRI screening is generally reliable.  Surgical intervention may be associated with loss of hearing, dry eye, facial paralysis or difficulties with balance. AN patients sometimes also develop trigeminal neuralgia pain due to nerve compressions, some of which may not be directly related to their AN.


    Agency for Health Care Research and Quality: “AHRQ, a part of the U.S. Department of Health and Human Services, is the lead agency charged with supporting research designed to improve the quality of healthcare, reduce its cost, improve patient safety, decrease medical errors, and broaden access to essential services. AHRQ sponsors and conducts research that provides evidence-based information on healthcare  outcomes; quality; and cost, use, and access. The information helps healthcare decision-makers patients and clinicians, health system leaders, and policymakers make more informed decisions and improve the quality of healthcare services.”


    American Pain Society: “a multidisciplinary educational and scientific organization dedicated to serving people in pain. The society was founded in 1978 as a national chapter of the International Association for the Study of Pain (IASP), and now  includes more than 3,200 physicians, nurses, psychologists, dentists, scientists, pharmacologists, therapists and social  workers who research and treat pain and advocate for  patients with pain.”


    American Academy of Pain Management: “the largest multidisciplinary pain society and largest physician based pain society in the United States.”  Includes FAQ files for patients and doctors,  a searchable membership list of pain management professionals, other information and resources for chronic pain patients.


    Clinical Trials: A service of NIH. Many patients have great interest in learning of the newest research efforts to deal with pain related issues.  On February 29, 2000, “the National Institutes of Health launched the first phase of a consumer-friendly database that provides information on thousands of federal and private clinical research studies.”


    The Dana Alliance: Want to know what is current in brain research, immunology, or arts education? Browse through this site for the news, read the publications, listen to broadcasts, and keep informed.


    Friends of the NIDCR: National Institute of Dental and Craniofacial Research (located on the campus of the National Institutes for Health).  Advocacy group working to foster and focus research on causes and remedies for oral and craniofacial conditions and disorders.


    Multiple Sclerosis Association of America:about 2-5% of all TN patients also suffer from MS.  This site provides resources on the disease.

    MultipleSclerosis.com: Offers comprehensive information about the understanding of the disease, treatment options, and daily management strategies.


    National Institute of Neurological Disorders and Stroke: see particularly: MEDLINE Research Search (Pre-Formatted, By Disorder)


    The Neuroscience Institute: Higher brain functions form the very essence of human life, yet they are not fully understood by scientists. The Neurosciences Institute, founded in 1981 by Nobel laureate Gerald M. Edelman, M.D., Ph.D., is dedicated to understanding how the human brain “works” at the most fundamental level.


    The AAN :  American Academy of Neurology and the AAN Education and Research Foundation.  AAN also provides a “find a neurologist” service for neurologists who are members of AAN.  The site provides both a “guest” service and a free membership sign-in.


    Sinusitis Information and Treatment: from Sinucare, a network of physicians in several states of the US, who specialize in sinusitis.  Trigeminal neuralgia can sometimes be mistaken for chronic sinusitis, and visa versa  [note:  see our Site Use Policy on non-endorsement].


    Surgical Treatment of Trigeminal Neuralgia and Hemifacial Spasm:

    Clinical Specialties in TN .


    TMJ Association (Temporomandibular Joint Problems): Information and patient support in a jaw disorder for which trigeminal neuralgia is sometimes mistaken.

     

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