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Research

   
 

YSM Shield.

Yale University
School of Medicine
Department of Neurology
New Haven, CT

Announcement:

Research study of familial trigeminal neuralgia.

Do you and a family member both have trigeminal neuralgia and are willing to participate in a research study to find out more about the cause of TN?  If so, please read the following:

Researchers at Yale are interested in identifying families with multiple members with TN. The purpose of the research study is to learn more about the cause of TN. The purpose is NOT to treat TN.

Frequently Asked Questions: (FAQS)

  1. Who is eligible?  You may be eligible if you and one or more blood relatives (parent, brother, sister, or child) have been diagnosed with TN, and both of you are willing to be in the study.  Children are allowed to be in the study.

  2. Who is not eligible?  You are not eligible if you have TN caused by multiple sclerosis, dental problems, a tumor or because of a vascular problem.

  3. What will I be asked to do?  You will be asked some questions by telephone about your medical history. You may be asked to send your medical records regarding TN to the researchers. If you are eligible, you will be asked to have blood drawn near where you live, and to give written permission for the information and the blood to be used in the research studies. We may call you later for followup information.

  4. Does it matter if I have been treated with medication or surgery?  It does not matter, and this study will not the change the way your doctor is treating you.

  5. Does this cost anything?  There is no charge to you.  However, we cannot pay you for being in the study either.

  6. Will I hear about the results?  Research is a slow process and does not guarantee results. If we find something that we feel is important to your health, we will contact you and let you know. If you do not hear from us, it means that we did not find anything, or that we did not find anything important to you.

  7. Who is overseeing this study? The study is being performed at Yale School of Medicine, Dept. of Neurology.  The rights of subjects in the study are protected by the Yale Human Investigations Committee.

 Whom shall I contact?

 

Laura Marshall 

Research Coordinator

Laura.marshall@yale.edu

(203) 785-5420

or

Dr. Fuki M. Hisama MD

Associate Professor

fuki.hisama@yale.edu (preferred)

(203) 737-2498

Posted 7-17-07