Find Support from the TNA Support Network
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Members of the volunteer TNA Support Network provide support and information that empowers patients to make informed decisions about their treatment of TN and related facial pain conditions.
Serving as one-on-one support for facial pain patients, families, friends and medical professionals in their area, this vital link further strengthens TNA’s ability to provide local information in a timely and accurate fashion.
The Support Network is an important source of help, hope and encouragement to those suffering from TN and related facial pain. Through discussions with fellow patients, our patients learn not only treatment information but how to more effectively cope with the devastating emotional challenges of this incredibly painful disorder.
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When emailing a TNA Support Person please put "TNA" in the subject/title line to ensure that your email message is read.
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International Support |
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The Facial Pain Association (formerly The Trigeminal Neuralgia Association) Support Network has been established in many cities in the U.S., Canada, and internationally. New groups and network patient contacts are constantly being developed, so if you don't see a contact in your area or if you would be interested in becoming involved, please contact Cindy Ezell, TNA Coordinator of Patient Support. |
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| CO |
| Support Group |
Telephone Support |
Colorado Springs
Sharon Jones sk_jones@comcast.net
719-632-3457 |
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Lakewood
Elizabeth Kristel
(303) 989-2656 |
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| GEORGIA |
| Support Group |
Telephone Support |
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Atlanta
Gail Pilger
(770) 391-0842
aepilger@comcast.net
Patricia Sumerford
(706)579-2499
patsysumerford@alltel.net |
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| IDAHO |
| Support Group |
Telephone Support |
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Spirit Lake
Eunice Gillam
(208) 457-9235 |
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| MONTANA |
| Support Group |
Telephone Support |
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Bozeman
John Morris
(406) 587-7809
(406) 587-0772 |
Helena
Douglas Carpenter
(406) 475-9769
carpendc@juno.com |
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| NEBRASKA |
| Support Group |
Telephone Support |
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Lincoln
Wardell “Dell” Smith
(402) 423-4202
dsmith24@neb.rr.com
Donna Shuster
(402) 477-7656 |
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Omaha
P.J. Morgan
(402) 397-7775 |
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| NEW HAMPSHIRE |
| Support Group |
Telephone Support |
Center Harbor
Leader needed
Please contact Cindy Ezell at:
cezell@tna-support.org |
Center Harbor
Nikki Clifford-Vachon
(603) 393-6838
sadie1of7@hotmail.com |
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Hampton
Claire Way
(603) 926-3958 |
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Wilton
Diane Nilsson
(603) 878-0967 |
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| NEW JERSEY |
| Support Group |
Telephone Support |
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Bogota
Joe Shuler
(201) 488-5027 |
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Long Valley
Barbara Noffke
(908) 876-3268
b.noffke@comcast.net |
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Mount Holly
Lisa Dornisch
(609) 265-0575
Dornischbdog@aol.com |
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Ocean County
John Lanzer
(732) 415-7716 or (201) 945-9355
jlanz4@msn.com
Josephine Miello
(201) 945-935 |
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Princeton
Everard Pinneo
(609) 921-0326 |
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Westwood
Jerry Newman
(201) 664-0163 |
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| NEW YORK |
| Support Group |
Telephone Support |
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Albany
Carol Bloom
(518) 377-6399
jst1ducky@aol.com |
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Buffalo
Kitty Hart
(716) 839-3429
Kittyhart@aol.com
Ellen Goldstein
(716) 883-8187
(716) 523-5236
egpr@aol.com |
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Elmira
Barbara Winter
(607) 739-7330 |
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Long Island
Regina Kearns
(516) 887-2037 |
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Manhattan |
Manhattan
Fred Rosenfeld
(212) 580-9279
Rev. Marion Zell Schwartzman
(212) 243-4671
Ann Warren
(215) 862-2921
swedishice@aol.com |
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Mid-Hudson Area
Tim Curtin
(845) 496-7956
tcurtin@hvc.rr.com |
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Queens
Larry Michelotti
(718) 843-7386 after 6pm |
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Syracuse
Diane Adams
(315) 637-6632
just_daffodils@hotmail.com |
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| NORTH CAROLINA |
| Support Group |
Telephone Support |
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Asheville
Susan Albu
(828) 658-9840 |
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Cary
Marge & Larry Oslund
(919) 467-2942 |
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Coastal Area
Carol Kroslow
(843) 237-0135 |
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Greensboro
Joan Stratton
(336) 855-6199
rstrat1995@aol.com |
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Hendersonville
Rev. Ronald Greiser
(828) 692-6703 |
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Wilmington - Coastal
Anita Davis*
(910) 686-6210
IXIIV@Bellsouth.net |
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| PENNSYLVANIA |
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| Support Group |
Telephone Support |
Philadelphia
Sue Remmey
(215) 576-7757
suerem@juno.com
Joyce Lewis
(610) 645-0691 |
Philadelphia
Leon Belancio
(215) 728-1223
Lisa Dornisch
(609) 265-0575
Dornischbdog@aol.com |
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Pittsburgh
Sandra Sweesy
(724) 352-9187
mamawjafra@zoominternet.net |
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Shavertown
Mary Bershee
(570) 696-0613 |
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| PUERTO RICO |
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| Support Group |
Telephone Support |
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San Juan
Altagracea Davila
(787) 789-6961 |
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| UTAH |
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| Support Group |
Telephone Support |
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Drew Pearson
(801) 268-2196 |
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| VERMONT |
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| Support Group |
Telephone Support |
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Quechee
Jean Raymond
(802) 295-6564
jcraym@gmail.com |
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| VIRGINIA |
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| Support Group |
Telephone Support |
Falls Church - Northern
Sher Cuzzivoglio
(703) 379-1395
novatnsupport@aol.com |
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Newport News - Mid-Atlantic
“Jack” Burns
(757) 413-2020
j.burns47@verizon.net |
Stephen Goolsby
(804) 273-8909
swgoolsby@comcast.net |
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Richmond - Mid-VA
Stephen Goolsby
(804) 273-8909
swgoolsby@comcast.net |
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Salem -South West
Stephen Goolsby
(804) 276-8909
swgoolsby@comcast.net |
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| WEST VIRGINIA |
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| Support Group |
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| Beckley Area |
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Michelle Dawn McGuire
(304) 252-9930
sowvtngroup@yahoo.com |
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| WISCONSIN |
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| Support Group |
Telephone Support |
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Eastern Area
Marge Brouillard
(920) 733-8648 |
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Fond du Lac
Bonnie Fiebig
(920) 922-8854 |
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Milwaukee
Alexandra & Mary Sczesny
(414) 525 - 2242
sewitnsupport@aol.com |
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Southwest Area
Clara Huston
(608) 326-6989
dalehuston@mchsi.com |
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| WYOMING |
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| Support Group |
Telephone Support |
Pinebluff
Alice Theobald
(307)245-3431
theo2253@rtconnect.net |
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Worland
Coleen Wilson
(307) 347-6584
meadowlark@rtconnect.net |
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